Monday, November 28, 2011

New Possible Diagnosis

Well, to the doctor's we go! Today we visited with Dr. Janet Harnsberger again. As frustrating as this has all been, I must say that I really like Dr. Harnsberger. Our family has a long history with her (since Kelsey was 2 years old) and she is fantastic. Today we started over again and went through Jake's history from top-to-bottom (no pun intended). She put my mind to ease about the brain scans. Apparently there were multiple neurosurgeons who reviewed the MRI at Primary Children's and one of those docs is VERY good in his field and she said she would trust that opinion, of any of the opinions. So, I will gladly, finally put that to rest!We decided we've x-rayed and scanned every part of Jake's body except his ankle. Since he isn't vomiting due to his ankle, we're starting over (at least with our thinking). As I said before, Primary Children's threw out a diagnosis of Cyclic Vomiting Syndrome, which this is not presenting typically for that diagnosis. I haven't been sold on that, though it is a possibility.

Dr. Harnsberger thinks Jake may have Gastroparesis, which reduces the stomach's ability to empty its contents. Basically, we don't want to do additional scanning at this time due to his recent multiple exposures to radiation. The only other testing to do for this diagnosis includes scanning, isotopes, etc. All the other testing needed has been done. We are going to start Jake on Reglan, a medication to help the motility of his stomach. There are some serious and frightening possible side-effects, so we are "starting low and going slow."

Side note....we sent Jake to school this morning for half a day, hoping to help him get in some "normal" before the doctor's appointment. By 9:21am he was sent home for vomiting twice. I got to stop by the school later in the day and talk to Jake's teacher. Mr. Drummond has been awesome and is helping us. We are considering applying for the school district to provide a tutor twice weekly until Jake can get back to school. We'll decide that for sure tomorrow once we mull over it and say some prayers.

Basically, the proof will be in the pudding. In other words, we are hoping to stop the pukes once and for all!! We are officially at 68 pukes in 14 days. Jake is ready for this to be a bad memory. It is at least a new hopeful direction and the possibility of an end. Even though gastroparesis can last a lifetime, some cases can do better after a year or so of treatment and kind of fix themselves. We will keep our prayers focused on that and HOPE, HOPE, HOPE we have found a solution.

5 comments:

angee said...

Praying for you! Love you guys! :)

Heesoon said...

While taking care of your boy, don't forget to take care of yourself too! We will pray for you guys.

Andie said...

Sending good vibes your way. You are in our thoughts often

Amy said...

My kids have been asking for an update all day. So thanks for keeping us informed. It's crazy how everything can go from normal to out of control in such a short period of time. You can send him over to play anytime he feels like it. We will just keep a bowl for throwing up close by for him. I would even clean it up if he had any trouble. :)

Kim said...

I hope it's a solution too. I think one of the hardest things about stuff like this is the not knowing. Although, I'm sure Jake would retort that it's the throwing up. I hope he can feel better, and really soon!